翻訳と辞書
Words near each other
・ Rare Breeds Survival Trust
・ Rare Chandeliers
・ Rare Coin Wholesalers
・ Rare Cuts
・ Rare Cuts (album)
・ Rare Cuts (EP)
・ Rare Cuts and Oddities 1966
・ Rare Demos & Freestyles Vol. 2
・ Rare Demos & Freestyles Vol. 3
・ Rare Demos and Freestyles Volume 1
・ Rare Diamonds
・ Rare disasters
・ Rare disease
・ Rare disease assumption
・ Rare Disease Day
Rare Disease Report
・ Rare Diseases Act of 2002
・ Rare Diseases Clinical Research Network
・ Rare earth
・ Rare Earth (band)
・ Rare Earth (book)
・ Rare earth element
・ Rare Earth hypothesis
・ Rare Earth in Concert
・ Rare earth industry in China
・ Rare earth mineral
・ Rare Earths Facility
・ Rare Earths Trade Dispute
・ Rare Element Resources
・ Rare Essence


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Rare Disease Report : ウィキペディア英語版
Rare Disease Report
== Company overview and history ==
Rare Disease Report is a web resource for physicians, other healthcare professionals, scientists, advocates, patients, and investors interested in rare diseases. It features video interviews, panel discussions, major medical conference coverage, daily medical news, stock prices, news feeds, and a calendar of events of upcoming medical conferences. A newsletter is sent out each week as well as for special breaking news stories to approximately 50,000 clinicians. All content in Rare Disease Report is free and does not require registration.
The website was initially launched in 2012. In December 2013, it was bought by Intellisphere LLC.
== Company areas (Medicine, Advocacy, Conferences, etc.) ==
The site’s homepage is where the website hosts its most recent articles, videos, social media posts, and upcoming events. It also has a search engine and sign up portal for the newsletter.()
The Specialties subpage provides a breakdown of articles and videos linked to specific medical specialties (cardiovascular, endocrinology, genetic, hematology, infectious diseases, lysosomal storage disorders, musculoskeletal, nephrology, neurology, oncology, respiratory).
Medicine is a subpage focused on articles and videos explaining treatment options for patients with rare diseases.
Advocacy is a subpage focused on articles and videos explaining the role of patients and patient advocacy in the rare disease space.
Business/Regulatory is a subpage focused on legal and investment issues that impact orphan drug development and marketing in the rare disease space.
Conferences is a subpage focused on coverage of the major medical and rare disease meetings held throughout the year.
Rare Disease Focus subpage provides a breakdown of articles and videos related to a specific rare disease (Castleman’s diseae, Cushing’s disease, Duchenne muscular dystrophy, Fabry disease, Gaucher awareness, HoFH, familial chylomicronemia syndrome).
The RDR Stock Portfolio provides up to date stock information on all major pharmaceutical and biotech companies with orphan drugs.

抄文引用元・出典: フリー百科事典『 ウィキペディア(Wikipedia)
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